Wednesday, March 27, 2013

Where do you turn to?

As a parent of children with autism, I am frustrated!!

I was just looking for autism resources in my community and guess what I found? NOTHING!!

I have calls and emails in to the Autism Societies of America and Florida to see what they can come up with.

This is very disheartening.

I know that there are individuals in this community that live with autism every day and to not have the appropriate resources except for them being over 3 hours away is horrible!!

I am lucky that my children live in an area where there are a lot of resources that when I needed them they were there.

I worry about parents who are where I was years ago in this area. There appears to be nowhere to turn for them - no outlets, no support groups, nothing.

I'm not going to give up - I'm going to work on getting resources here and raising awareness that support is needed. How am I going to do it - I have no idea but the impulse is a strong one to do something about it!
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2 comments:

  1. SSPMarch 27, 2013 at 4:18 PM

    I expect it might be similar with autism, but in my experience with diabetes, the hands on, face to face connections with others with my disease, are vital...When I moved to NYC 15 years ago, there actually was NOT a pump support group...so I found one other person who had a pump, and we started one. We passed out flyers at doctors' offices and posted in the online support groups...and we had about 9 people show up that first time! The group is still going, I am really proud to say! Maybe you can start a resource clearing house, or support group for parents who are given this diagnosis?

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    Replies
    1. KrystalMarch 29, 2013 at 8:13 AM

      I'm looking into doing something like that. Since school is in Spring Break now its hard to get a hold of the ESE department but starting next week I'm going to give them a call. I know that we live in a small town so to speak so resources are not easy or funded here so it will take time. I just know that it is hard for parents whose children have autism to not have support. For me it was an on-line support group that got me through my oldest son's diagnosis and the diagnoses of the resot of my children. Thanks for your idea!! ((HUGS))

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