Wednesday, March 27, 2013

Where do you turn to?

As a parent of children with autism, I am frustrated!!

I was just looking for autism resources in my community and guess what I found? NOTHING!!

I have calls and emails in to the Autism Societies of America and Florida to see what they can come up with.

This is very disheartening.

I know that there are individuals in this community that live with autism every day and to not have the appropriate resources except for them being over 3 hours away is horrible!!

I am lucky that my children live in an area where there are a lot of resources that when I needed them they were there.

I worry about parents who are where I was years ago in this area. There appears to be nowhere to turn for them - no outlets, no support groups, nothing.

I'm not going to give up - I'm going to work on getting resources here and raising awareness that support is needed. How am I going to do it - I have no idea but the impulse is a strong one to do something about it!


  1. I expect it might be similar with autism, but in my experience with diabetes, the hands on, face to face connections with others with my disease, are vital...When I moved to NYC 15 years ago, there actually was NOT a pump support I found one other person who had a pump, and we started one. We passed out flyers at doctors' offices and posted in the online support groups...and we had about 9 people show up that first time! The group is still going, I am really proud to say! Maybe you can start a resource clearing house, or support group for parents who are given this diagnosis?

    1. I'm looking into doing something like that. Since school is in Spring Break now its hard to get a hold of the ESE department but starting next week I'm going to give them a call. I know that we live in a small town so to speak so resources are not easy or funded here so it will take time. I just know that it is hard for parents whose children have autism to not have support. For me it was an on-line support group that got me through my oldest son's diagnosis and the diagnoses of the resot of my children. Thanks for your idea!! ((HUGS))


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